These pictures added 5-30-06
Weight 3 lbs 9.2 ozs
300mL Oxygen On Nasal Cannula
Receiving 27ccs milk every 3 hours
Fed by gravity
Trying to hide from those bright camera lights
Daddy's voice helps me rest easy.
Getting dressed for the first time. Sarah Beth wasn't so sure she liked it.
From Beth: Sarah Beth has had some ups and downs since we last updated. She is growing well still even with the diuretics they have been giving her. They are weaning her off both her steroid medications. She has started taking vitamins to supplement her feedings. She LOVES her isolette and she obviously rests better all the time in it. She is starting to try to suck on everything, especially when she is getting ready to eat. She takes her pacifier and likes to hold it while she sucks on it.
Her oxygen levels are up and down. Sometimes she requires more oxygen for no obvious reason. Yesterday for instance, Sarah Beth was up to 550mL of oxygen and couldn't seem to keep her sats very high. Today, however, she was back down to 300-350mL of oxygen and her sats were in the high 90s. The doctors and nurses hope she'll wean down more.
The nurse said today that they'd like to
start her on feedings by mouth soon. They hope her oxygen levels can
steady out before trying that, so they are waiting. She will have to be
eating all her food by mouth before they will move her to an open crib.
She has to be in an open crib before she can go home. Many steps we still
have to take, but we seem to finally be walking in the right direction.
Thank you all again for your continued prayers. We still need them!
http://www.frappr.com/sarahbeth and add yourself to the map. You should be able to do this with any connection, but it may take a little longer for dial-up people. If you cannot add yourself for some reason, feel free to drop me an email --
beth at bethnjoe dot com (typed out to prevent spam)
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